She needed this time so much. And now, it has been two weeks. Yes, the blood work they needed was important, and it will still be important this morning when we go to get it done. But a little break has been just what our girl needed…hopefully it has given her little veins some time to heal, and they will be able to get a good draw!
It feels so precarious right now as we try to keep our girl healthy and strong. She has a very hard time keeping her potassium down, though we have tried just about everything. She still throws it up.
But she is eating… not great, and we have to work at it, and it takes forever, but she is getting a little nutrition. Despite the eating, tiny P is still losing weight. She is so thin, and clothes that were getting too small for her in January are now too big! Our two year old has dropped almost two sizes. She is so thin and frail right now that it just breaks my heart. Her little system is just working overtime because of her sick heart, and that makes her metabolism much higher.
I am in touch with her GI and cardiologist constantly, and we are trying to stay on top of tiny P’s health. We need her to be strong, and we need her to gain weight!
And now our two week break is over, and we are back to our crazy schedule of specialists and lab visits…