Tiny P

Two weeks ago I decided that we all, but especially tiny P, needed a little break from doctors… we were at the nephrologist for a check up, and we are just starting to figure out what kind of kidney issues our girl has. They decided that they needed blood work, and right then I decided that we were done. Not done, done, but done for a little while. So I decided that tiny P was going to get a two week break from doctors. I cancelled everything, and we have been hanging out at home, not going to any appointments!

Today also marks one month since our girl’s heart cath…one month that she has been out of the hospital! We are hoping for the whole Summer, wouldn’t that be great for her?!

It feels so precarious right now as we try to keep our girl healthy and strong. She has a very hard time keeping her potassium down, though we have tried just about everything. She still throws it up.
But she is eating… not great, and we have to work at it, and it takes forever, but she is getting a little nutrition. Despite the eating, tiny P is still losing weight. She is so thin, and clothes that were getting too small for her in January are now too big! Our two year old has dropped almost two sizes. She is so thin and frail right now that it just breaks my heart. Her little system is just working overtime because of her sick heart, and that makes her metabolism much higher.