Sunday, December 4, 2016

Sunday...

Live simply, love generously, care deeply, speak kindly...leave the rest to God. ~ Ronald Reagan





Wednesday, November 30, 2016

Wordless Wednesday...Ready For Christmas













Sunday, November 27, 2016

Sunday...

I've seen dreams that move the mountains, hope that doesn't ever end, even when the sky is falling...
I've seen miracles just happen, silent prayers get answered, broken hearts become brand new.
That's what faith can do ~ Kutless




Friday, November 25, 2016

Friday Phone Dump...

Opening his eyes wide...haha!!



At the hospital for cath day...



Ready to get settled in.


Waiting for some happy meds.


After cath.


Settled in for the night...


Happy to go home!


Tired girl...


Back at the hospital for hematology clinic.


She didn't like him a year ago, and she informed me that she still doesn't. Sorry, Ryan...she likes who she likes.


Sometimes you have to put on your doctor coat, and sit with your lambie to watch some Doc Mcstuffins.


Just peeking.


One of our favorites in the world... Paisley's beloved transplant cardiologist.


Just cute sisters, cuddled up together.


That face...so sassy, haha.



Why does my baby look so grown up here?


This boy. I am IN LOVE with those glasses



That's a big bag of doritos there.



Bath baby.



Christmas has come...








Thursday, November 24, 2016

Tonight We Are Thankful...

Last Fall, our baby looked like this...


She was in severe heart failure, and she was so sick, and uncomfortable.

This year, our baby girl is not sick, but full of the life her hero heart has given her.



Without this precious hero heart, our baby would never have seen this birthday. Today? Our baby is four...and we have SO much to be thankful for.








Happy Thanksgiving!

Rejoice always, Pray without ceasing, in everything give thanks, for this is the will of God in Christ Jesus concerning you. 1 Thessalonians 5:16-18





Photo cred: John Chase

Tuesday, November 22, 2016

A Year Of Miracles...

One year ago today we woke up, and started to get ready for church. But we never made it to church that day, because we got a call that not only changed our lives, but gave our baby new life...

We are so thankful for the beautiful year, full of life, our little girl has enjoyed. It has been a year full of love, and joy, and sass. Our tiny P has gone from a very sick and sad baby who slept for most of the day to a vivacious, happy little girl who is radiant with new life.


A year ago we were watching our baby get sicker, we were watching her heart fail...we were watching her die. She was so loved, and I was so lucky to be able to spend my days holding her and loving on her. She is still so very adored. She is on the go constantly, but she stops often to give me hugs, and wrap her little arms around my neck...arms that are getting stronger as time goes on.


Our baby couldn't run, or play, or even walk for more than a few steps. This year, our little girl is climbing whole flights of stairs, plays nonstop, and is running everywhere. She can play at the park, and can almost keep up with her brother and sister.


A year ago, our baby was wasting away. Her little heart just wouldn't sustain a healthy body weight, even though she was receiving extra nutrition through her g-tube. This year, since receiving her hero heart, our little girl has gained over ten pounds! She is a healthy weight for her size!


Last year our baby was so small...but over the past year she has grown four inches! She was weak, but now she is strong.
Our baby used to be in constant pain. Now she is pain free, and thriving.


Last year her lips and her skin were blue, and her little fingers and toes were blue and clubbed.
This year, she is pink. The little hands holding this necklace are pink and glowing with life.


More than anything else, what brings us the most joy, and gives us all the feelings...is seeing our little girl happy. She laughs, and she laughs often. She LOVES life, and she is living it with abandon, and that my friends? Is a miracle.