Sunday, May 1, 2016

Sunday...

There's never really a perfect time to foster or adopt...Just a lot of opportunities to say yes despite the many reasons you have to say no. ~ Jason Johnson

Friday, April 29, 2016

Friday Phone Dump...

I could seriously stare at these cheeks all day...


A very full backpack, and a cute little purse...and we're ready for school.


Sleeping...


Playing at the park. It makes me cry to watch her, and I will never take playing at the park for granted.


It's a tantrum. Because little M said she tiny P couldn't fit in little M's bed with her. Hurtful...ha.


SO totally worth it!


Not feeling well.


Back in the hospital. It's so sad to go for a clinic visit, and get admitted again.


Little masked baby...


She is so brave. And so strong...


Tiny girl in a very big wheelchair.


After a couple bags of blood...


Visits from friends...we love it.


These two...brave heart babies.


Look mommy, I look like sleeping beauty!



So cute, but SO sad...she tries to hide from the lab people because she doesn't want any more pokes.



This is how we feel about no food ALL day long.


Finally heading down for her heart cath.


Cute sleeping baby...she rocked her cath. Then she got the morphine.


Ready to head home...with ZERO rejection.


Baby in a bath...


He still likes to hold my hand in public...please let it always be so.


She picked her own sunhat...and she wants to wear it always, always and forever.


Baby J's family day. This is real life, people. Two well-behaved children, and a naked baby on the table. Whatever...



Tuesday, April 26, 2016

Tiny P's Big News...

Our tiny P has been sick with a cold since February... and when she started running random fevers, her original heart catheterization had to be rescheduled. She had also been struggling with being very anemic despite being on high doses of iron. Since her heart cath was rescheduled for the next week, we went in two weeks ago for her pre-op workup. She was still running random high fevers, but the thing that concerned Dr S the most was that despite upping her iron dose, her blood work showed that she was even more anemic.

The decision was made to admit her that same day to start some blood transfusions. She also had a full viral panel done to rule out viruses that might cause her fevers, and we got visits from hematology and the infectious disease team.

After a couple bags of blood, our girl was full of energy and ready to go! She never spiked a fever while she was in the hospital, so we are still not sure where those fevers came from. They decided to go ahead and do her heart cath, since we were already there for the week, and she did great!
They did her heart biopsy to check for rejection, and even though the pressure numbers weren't great, her heart function overall is very good.


She had her cath late on Thursday, so we got the cath results on Friday morning... zero rejection!  This is HUGE news! We haven't had zero rejection since her first cath post transplant.

We also got another visit from the hematology team...after Tiny P's blood study, they found that she is anemic because she has thalassemia.  It is a blood disorder that she was born with, but that, for some reason, only just now presented. We will be learning more about what this means for tiny P in the coming months! It may mean some medication changes, and regular blood transfusions for tiny P...This is a bit of a surprise, but truly not a big deal.

This girl is so unique and so special, sometimes I feel like we may never know everything there is to know about her!

She is amazing, and we are so blessed to be her family.


Sunday, April 24, 2016

Sunday...

Differences of habit and language are nothing at all if our aims are identical and our hearts are open.
~Albus Dumbledore


Tuesday, April 19, 2016

Three Years...

Three years ago today we got off a plane and drove home as a new family of four.

Three years ago, this little guy walked into his new life with the same enthusiasm he brings into everything he does. Our tiny tornado was all in.


Our baby J loves everything and everyone. But most of all, he loves his family. He is fiercely loyal, and his sisters are his very favorite people in the world.

Even though baby J is physically healthy (especially compared to his sisters), he came from a background of trauma that has left quite a mark on his little self.


He is all boy, and he is WILD...but he is so careful and so gentle around his sisters, especially tiny P, and he treats her like a delicate little flower, even though she is definitely not that, ha!

His favorite thing to play is pirate, and tiny P is always his willing participant.


He has come such a long way in three years, and even though I know we still have work to do in the area of attachment, and getting our boy emotionally healthy, seeing how far he has come gives me hope for his future.

He is so happy, and he has the best giggle in the world...


Three years ago, this little guy became our little guy, and we are so privileged to be the ones chosen to walk through this life loving him.

Happy three years, precious boy!