Sunday, May 21, 2017

Sunday...

It doesn't matter how this looks to other people. If this is something you've got to do then you do it. Fighters fight. ~ Rocky Balboa

Friday, May 19, 2017

Friday Phone Dump...

When g-tube change, and bath time coincide...things look a little bit different.


I've got my eye on you...


When she tries to take a selfie...


This girl... it sure did take her a while to get back on her feet after her heart cath.


Yes, yes, she does have a sword in her pants...haha.


When you don't feel well, and daddy makes you a bed in his office, so you can lay by him while he works.


Workers working... someone got a desk in her room. The small one is supervising.


We are trying to make him fat...or just gain weight.


Her choir teacher. Because our big girl did church choir this year.


Mood. It's been a mad week, haha.


Window sitting.


Heart check up. She loves these days...little weirdo.


 We do NOT love blood work.


We also do not love Tom And Jerry, apparently...


Somebody's fab-u-lass!!


Rain, rain, don't go away...


He wants to be a "bles ofisr" (police officer). This is funny because he is absolutely terrified of police.



When it's your heart cath week, and you want to ride the train at the mall. that is just what we do.


I told her that she could pick where we ate lunch, and she picked Starbucks. I'm so proud, haha!


New glasses... thank goodness for the full coverage plan!


When you have a cath, and you can't be crazy, we do lots of puzzles. Obviously, she is thrilled.


Why does she look ten when she wears a nightgown??


Thursday, May 18, 2017

Another Day, Another Heart Cat

We were up bright and early on Tuesday to head to the hospital with our girl...
This girl...even though she knows what going to happen, and she is scared, she still has the happiest attitude.


She loves her "hospital friends," and is quite the celebrity.


We played with some stickers in between talking to doctors, and anesthesia...


Got vitals done...


Changed into a hospital gown, and played airplanes.


Then she got some relaxing, happy drugs...


This girl needs to be held when those drugs kick in!


We carried her back, and held her while she went to sleep...

Then we grabbed some breakfast, and visited some friends while we waited.

Three hours later, we were heading to see our girl.


She woke up, and was more in pain and angry than we have ever seen her before...but after getting some morphine, she relaxed and slept for a little bit.


Morphine and our girl are a fabulous mix...She alternates between grumpiness and joy, and she is hilarious! She kept us laughing all afternoon.


We found out that her pressures look amazing, even better than her last cath! They are not perfect, but they are as close the normal range as they have ever been.


This is your brain on morphine. Any questions?


Our girl was thrilled to go home, and sleep in her own bed!

We found out yesterday that her biopsy results were a bit inconclusive... there was a level of rejection detected, but it was unclear what it was... today, it was decided that since her heart function looked good, she did not need to be treated for rejection. So she is home!

We will take that, and we are thrilled with it!


Monday, May 15, 2017

Tomorrow...

Tomorrow is tiny P's heart cath... after little M's complications, we are a little nervous to go into this next cath so soon, but I know this girl is going to rock this!





Sunday, May 14, 2017

Sunday...Happy Mother's Day

They are mine in a way they will never be hers, they are hers in a way they will never be mine. And together, we are motherhood. ~ Desha Wood.

So thankful for three women I have never met today, and the life they gave my three babies.


Sunday, May 7, 2017

Sunday...

Character isn't defined on the mountaintop, it's only displayed there when it has been refined in the valley. ~ Pam Parrish