Thursday, October 23, 2014

Fall Specimen Art...

So little M has been dying to make some seasonal crafts... we found this cute halloween eraser idea on Pinterest, and got our mini erasers in the dollar section at Tar-jay.



Little M laid everything out and glued her erasers on...


And now her cute little specimen art sits by my kitchen sink to make me smile.



But she wasn't done... she also found these leaf stickers in our craft box, and decided to make some Fall art...


It's maybe a little different than the way I would have done it, but I love that it is all little M, and her creativity.


Wednesday, October 22, 2014

Wordless Wednesday... Happy Sisters






Tuesday, October 21, 2014

Tiny Heart...

Over the years with our little M, we have learned some things about congenital heart defects... with our little M we learned about ToF (tetralogy of fallot), DORV (double outlet right ventricle), Pulmonary atresia, PR (pulmonary regurgitation), and ASD (atrial septal defect)...


Lately, we've added a few new ones... we have been learning about single ventricle, and single atrium. We've been brushing up on pulmonary atresia, and reading about dextrocardia... these are the things we knew our tiny P had, the things that were listed in her file from China before we got her.


Now, after seeing the cardiologist last week, we have added a few more things to add to our list of things to learn about...
We found out that instead of having dextrocardia, tiny P likely has heterotaxy. Rather than only the heart being shifted to the other side of her chest, all her organs are shifted. This condition brings along some other things to think about and prepare for... like problems with the liver, and some possible issues with the spleen. So when she has her catheterization, she will also have a spleen/liver scan.


We also found out that in addition to the pulmonary atresia tiny P also has pulmonary stenosis.
AND, because her precious little anatomy needs just one more thing, we learned that she also has TGA... transposition of the greater Arteries/vessels... all the major arteries going into her heart are on the wrong side.

What does all of this mean?
Honestly, I have no idea... at least not yet. But we will, hopefully soon. Tiny P is scheduled for a heart catheterization in two weeks, and we will have some more concrete answers concerning our precious tiny P, and her precious tiny heart.


Sunday, October 19, 2014

Sunday...Eighteen Months!

Eighteen months ago, we got off a plane, drove home, and walked through our front door as a family of four.


Baby J settled into our family with the same fervor and enthusiasm he shows for every new thing...


This boy has had such a long road, and we have been honored to travel that long road with him...


And to be honest, I am glad to be on this side of that journey.


Our baby J still has a long road ahead of him... a road of growth, of overcoming sensory issues, and a road of attachment.


But looking back, over the past eighteen months, looking at how far he has come, how he has grown, and what he has overcome... looking back gives us hope for his future.


He is happy, and loud, and he loves his family. He is a sweet little guy who loves cuddles, cars, trains, and boats.


And most of all, for the past eighteen months...he is ours. And we are so thrilled that he is!


Friday, October 17, 2014

Friday Phone Dump...

Traveling in style... the baby sometimes still gets carsick, so for long distances, a towel has to happen.


Little M... not so thrilled about flu shots. Not to worry, she rocked it without even a tear. And she got a milkshake.


Sadly, this is the only picture of baby J in this week's phone dump. Why? Because the child never is still, and every phone picture of him is a blur as he runs by.


Not screaming in the bathtub... progress!


Not amused at the cardiologist.


She told me she was princess dandelion. Then she told me to take a picture so we could remember it forever.


We see this smile many times throughout the day now...


Then she gets told no...


And we see this face... but I think this face is beyond adorable, and even amusing.


And in five seconds, she is usually over it.


Thursday, October 16, 2014

Little Hair...

Baby J has said several times this week that tiny P's hair is almost as "little" as his hair is...



And little M has commented that we need to grow her hair out quickly, "so she can be a girl." Clearly we need to talk more about what makes people a girl...


Tiny P does have very "little" hair. There is quite a bit of it, but it is very coarse, and cropped pretty close to her head.


She loves for me to do her hair every morning, and always wants me to put an elastic in like I do with little M's hair...


So I did. Hopefully it grows quickly!