Sunday, February 19, 2017

Sunday...

Do not wait for someone else to come and speak for you. It's you who can change the world. ~ Malala Yousafzai



Wednesday, February 15, 2017

Wordless Wednesday...Lover Boy

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Tuesday, February 14, 2017

Love...

Love is me...and love is you. So when you smile, I smile too. 
When you're around, the skies are blue. It's like being happy! Times two!
Love is sweet...and love is GRAND!
Sometimes love is just holding hands. It's a feeling inside. It's a smile in your heart.
It keeps us together when we're apart.
Love is fun! It's feeling free!
Love lets you be who you want to be.


Love will catch you when you fall.
Love! It's the greatest gift of all.
It's just us, without a care.
It's what we give...and the times we share.
It wipes away the tears...sends our troubles along.
Love is the place where you ALWAYS belong.


And we've got love-me and you. 
We're sticking together. We'll see it through... 
And wherever we go love will always be, because...
Love is you, and me. 
~Monica Sheehan



Monday, February 13, 2017

Little M...

It's almost been a year...and every year, around this time, I start to get a little bit nervous. Every year around this time, we start planning for and talking about little M's next cardiology appointment.

She knows what to expect...she knows she will get an EKG, and echo, her cardiologist, Dr M, will listen to her heart, and review her tests. They will talk and joke and laugh. She makes him cards and writes him nots about how hilarious he is. He will hug her and tell her she is adorable.

I know what to expect, too, but I never know what will happen in the end...He will compare her tests to last year's, and he will decide what we need to do next. Do we need to do an MRI? A cath? Or will it be unchanged, and we can wait another year? Will we need to start seeing him every six months?



I know that every year that passes brings us closer to the news that little M's heart can't wait any longer...and it is surgery time.

What will next month bring?




Sunday, February 12, 2017

Saturday, February 11, 2017

Beads...

Each bead stands for one single event that happens to our girls while they are in the hospital, whether they are inpatient, or just there for the day. A yellow bead means they stayed overnight, black beads are for getting poked, there is a bead for surgery, and a glow-in-the-dark bead for echos...

It is a beautiful, colorful record of everything they have been through, and they love to look at their beads, and talk about each one.

 Beads of Courage is an organization that works to provide these specially made glass beads to help children record, and tell their story of survival in a beautiful, tangible way. We love watching our girls' pride in their beads, and we love that it gives them a way to take ownership and pride in their stories.















Friday, February 10, 2017

Friday Phone Dump...

Sometimes you just have to sit in your box...on the couch.


Early morning coloring waiting to get blood work.


Funny faces waiting to get her echo...


Reading night at school...of course she is the last to leave the library.


Donuts on a Saturday...they make us smile.


Reading about natural disasters...what else?


Snacking and waiting for school to get out.


Signing M.


At a car show.


"taking a picture" of a cool car.


Little girl in a big truck...


Back for more bloodwork...


And...back again.


Little girl has had some problems with her immunosuppressant levels, so there has been many trips to the hospital the past couple weeks while we try to get her levels up.


Excited to get a package with her name on it... even if it IS just meds, haha.


Cute little gymnast...



Valentine's sensory box.