Wordless Wednesday…My Heart Heroes

By Joanna Billigmeier | May 20, 2015 |

Posted in Parenting

2 Comments

Renate on May 21, 2015 at 12:44 am

Those are the cutest tooth less super heroes I have ever seen! Love!

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michelle on June 10, 2015 at 7:54 am

Thanks for the info about Heart Heroes! i was able to get a hero cape for my daughter who has atrial septal defect. She is loving it!

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Joanna Billigmeier

I have a wonderful husband and four amazing and precious children who were born in China. More about me...

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Halfway to 11… just so thankful to celebrate eac

Halfway to 11… just so thankful to celebrate each and every milestone with this little queen. We don’t take one single day with her for granted, so of course we celebrate half birthdays. 💗💗

#paisleyhasanewheart #happyhalfbirthday #halfwaytoeleven #tenandahalf #hearttransplant #cardiacarrestsurvivor #wecelebrateher

His nap game is still strong. I could watch this b

His nap game is still strong. I could watch this baby boy all day.

#finnsbraveheart #lethimsleep #naptime #babyboy #stillnapping #mamasboy #babynumber4

Today is his half…this baby boy is halfway to se

Today is his half…this baby boy is halfway to seven! He’ll always be our baby Finn, but he is becoming such a big boy! Happy half, baby boy! 💙

#finnsbraveheart #halfbirthday #sixandahalf #halfwaytoseven #babynumber4 #mamasboy

Buddies. Besties. Brother and sister. #paisleyha

Buddies. Besties. Brother and sister.

#paisleyhasanewheart #finnsbraveheart #brotherandsister #bestfriends #bffs #adoptionmakesafamily #familyforever #lovemakesafamily

Writing by Finn… write about a time when you had

Writing by Finn… write about a time when you had lost a tooth.
“The dentist take my tooth”

When you have medical needs, sometimes your first teeth lost are lost at the dentist.

#finnsbraveheart #chdwarrior #kindergarten #writingbyfinn #thebabyfinnwrites #schoolwork #mamasboy

When your heart is working harder, you feel tired

When your heart is working harder, you feel tired and it’s harder to have the energy to eat, and even when you eat it’s hard to gain weight.
To help her body get used to eating more than one meal a day again, and hopefully put on a little weight, Paisley started an appetite stimulant.
It’s working. Our girl is eating, and for someone who loves to feed her people, this makes me very happy. ♥️♥️

#paisleyhasanewheart #hearttransplant #cardiacarrestsurvivor #arrhythmias #heartfailure #appetitestimulants

She’s not fragile like a flower, she’s fragile

She’s not fragile like a flower, she’s fragile like a bomb… but she is fragile. And yesterday when her EP team called to let us know that she was having runs of extreme bradycardia (low heart rate), we were reminded how fragile our girl is. We brought our girl in to meet with her team today to make sure that this is not something new to terrify us. We made some changes to meds and her internal monitor and we have some things to discuss and think about.

We are always just so thankful for this girl. ♥️♥️

#paisleyhasanewheart #hearttransplant #cardiacarrestsurvivor #notfragilelikeaflowerfragilelikeabomb #bravestgirl #mamasgirl #heartfailure #warrior

I could watch her all day. 💗💗 #paisleyhasan

I could watch her all day. 💗💗

#paisleyhasanewheart #tinydancer#happygirl #hearttransplant #heartfailure #cardiacarrestsurvivor #mamasgirl

Heart clinic for the baby and the oldest this week

Heart clinic for the baby and the oldest this week… thankfully everything looks stable for both and they don’t have any major changes! We love that kind of news! 💙❤️

#mackenzieisamazing #finnsbraveheart #chdwarriors #chdclinic #heartclinic #heartcheck #tof #tetrologyoffallot #okdestandyoungest

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