The Heart Facts…

By Joanna Billigmeier | February 3, 2016 |

These are just a few facts about our baby’s hearts that I have posted on Facebook the last couple days…

Little M was born with tetralogy of fallot (ToF)…she had four heart defects, and double outlet right ventricle (DORV)…both of her great arteries connect to her right ventricle instead of one connecting to her left ventricle. She had surgery to close up two large holes in her heart after she first came home. She has moderate to severe pulmonary valve regurgitation, and she will have a pulmonary valve replacement by the time she is ten. To know little M is to know joy. She radiates happiness with her whole self, and her brave heart is the happiest heart I know. It is such a privilege to be this girl’s mommy, and watch her special heart grow.

How unique is our tiny P? 
1 in 100 babies are born with CHD (congenital heart defect). 1 in 5,000 babies are born with single ventricle. 1 in 3,000 babies are born with DORV. 4 out of every 1,000,000 babies is born with heterotaxy and 1 in 12,000 is born with dextrocardia. 
That makes our girl pretty special!

Our baby J is “heart healthy.”
He has a different kind of special heart. We get asked all the time how being in the hospital so much affects our other kids…it does affect our boy! He asks almost every day to check on the computer for kids who need families. He talks all the time about how we need three more kids in our family, two boys and a girl, to fill the empty chairs at our dining table. And he talks about how they will all have special hearts and how he will help while they are in the hospital. His heart is wide open, ready to love, and so beautiful.

Posted in Parenting

1 Comment

  1. Alyson and Ford on February 8, 2016 at 11:57 am

    Such beautiful children, loving family; you are all brave and have been through so much. Happy Chinese New Year 2016!Alyzabeth's Mommy (Facebook Ford Alyson Cobb Morgan)

    Reply

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I have a wonderful husband and four amazing and precious children who were born in China. More about me...

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