We enjoyed our first hospital free week!
Then, yesterday morning our baby got up, and brought us her tube… which had come out of her stomach sometime in the early morning!
We called the hospital while we packed, and then we headed down to Children’s…
We were hoping our girl wouldn’t need surgery to re-place her tube…and they found that she had a small opening, which they were able to dilate over the course of the afternoon, and make her stoma big enough again to fit her regular sized tube back in.
Her stomach will be tender for a while, but she has her regular g-tube back in!
This is not an easy or pain free process, and tiny P said that it felt like they were cutting her stomach open, and if they were going to cut her open they should put her to sleep… poor thing.
We are very, VERY thankful for her g-tube, which allows her to get some pretty yucky meds, and stay hydrated the way she needs to!
And now? We are on a break again. Ha.
Oh my gosh, so brave. Then she even smiles. Beautiful brave baby!