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Sunday…

By Joanna Billigmeier | March 29, 2015 | 0

A diagnosis can’t predict the extraordinary love you will have for your child. ~ Tara McCallan

Posted in Parenting

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ABOUT ME

Joanna Billigmeier

I have a wonderful husband and four amazing and precious children who were born in China. More about me...

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jojobilligmeier

Howling 🐺 It was a full moon this week. 😊

Howling 🐺
It was a full moon this week. 😊

#billigmeierfam #springbreak #canada #wolflodge #sleepingwithwolves #howlatthemoon #wolfpack

No need for tv when you have wolves outside all of

No need for tv when you have wolves outside all of your windows. She is the happiest little girl…and the rest of us are loving this too!

#paisleyhasanewheart #billigmeierfam #springbreak #canada #parcomega #wolflodge #sleepingwithwolves

Number one on her bucket list was to sleep with wo

Number one on her bucket list was to sleep with wolves… and this week we made that happen!
Thank you @parcomega for making this girl’s dreams come true! This wolf lodge in Canada sits right in the middle of a wolf pack of thirteen wolves! Our whole family loved this experience!

#billigmeierfam #canada #springbreak #paisleyhasanewheart #heartfailure #cardiacarrestsurvivor #bucketlist #parcomega #wolflodge #sleepingwithwolves

Hello Spring break… hello and goodbye, Montreal!

Hello Spring break… hello and goodbye, Montreal!

#billigmeierfam #montrealcity #ohcanada #springbreak

Happy saint patty’s day! ☘️ #finnsbravehea

Happy saint patty’s day! ☘️

#finnsbraveheart #luckylittlebuddy #saintpatricksday #happysaintpattysday #babynumber4 #mamasboy

Sweet sixteen… Happy happy birthday to the very

Sweet sixteen…
Happy happy birthday to the very best! I hope this is your best year ever, we sure do love you!

#mackenzieisamazing #happybirthday #sweetsixteen #sixteenyears #babynumber1

She is the most excited about this next step in he

She is the most excited about this next step in her heart care journey. Paisley has been advocating for a few things for herself lately in regards to her medical care, and some of those things are that she would like less procedures and hospital time.
This week she started home health care with at home blood draws.
While these might not be the things or the medical path we would choose for our girl, she is her own strongly opinionated person, and this is her heart, her health and her body…her mental health is more important than ours. ♥️

#paisleyhasanewheart #hearttransplant #eightyears #heartfailure #cardiacarrestsurvivor #homehealthnurse #chdwarriorqueen #strongestgirl #mentalhealthmatters

Usually we will have several Dr appointments a wee

Usually we will have several Dr appointments a week, and I try to space them out so that we are not living at the hospital… but sometimes, like yesterday, it just works out that we have more than one in a day. Yesterday was a day where I got to the hospital with one child early in the morning for bloodwork and cardiology clinic, then Josh brought another child in to the hospital. We traded off and I took the oldest to have their cardiac MRI done. Such a busy long day, but we got some good information for both oldest and youngest kiddos and their special hearts. ♥️♥️

#mackenzieisamazing #dorv #doubleoutletrightventricle #cardiacmri #finnsbraveheart #tof #tetralogyoffallot #cardiology #clinic #chdwarrior

They say if you don’t like the weather in Colora

They say if you don’t like the weather in Colorado, just wait five minutes. 😂
Yesterday was perfect for hiking and today we have a winter storm watch and lots of snow.

#billigmeierfam #colorado #rockymountainhigh #fortheloveofevergreen #evergreen

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