Bubble Joy... - Crafty Nester

Crafty Nester

I hope little M never outgrows her happy, happy love of bubbles…I also wish you could hear the way baby J never stopped squealing.

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ABOUT ME

Joanna Billigmeier

I have a wonderful husband and four amazing and precious children who were born in China. More about me...

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Because these children are always eating and snack

Because these children are always eating and snacking, I have given up on the snack basket and gone to a snack cart. @michaelsstores carts are perfect, we have several!
#snackcart #michaels #alwayshungry #myfourbabies #snacks #itscutetoo #billigmeierfam

Home is the best... 💗💗 #paisleyhasanewhear

Home is the best... 💗💗

#paisleyhasanewheart #hearttransplant #heartcathtime #sweetestgirlever #chdwarriorqueen

Just as we were about to head home, in the wheelch

Just as we were about to head home, in the wheelchair and packed up, Paisley’s nose started bleeding profusely... she has only ever had one nose bleed, years ago, and she just started back up on her blood thinners after her cath, so we stuck around a couple more hours to be sure she was ok. Then we got out of there!
We are still waiting to hear some test results, including her biopsy results, but she (and me too!) is happy to be home, and all of us are happy to have her there!
She is still tired and a bit lethargic, with zero energy, but hopefully we’ll see her bounce come back soon. 💗
#paisleyhasanewheart #hearttransplant #heartcathtime #mamasgirl #home #alwayshope #chdwarriorqueen

When it’s almost time to go home, but you can’

When it’s almost time to go home, but you can’t remember where you are or hold your head up, you get a visit from the neurology team... and when you can’t pass the neuro evaluation, you get admitted instead of heading home...
We are here through the night for observation, and Paisley will have evaluations every two hours. She is already doing better with most functions, but she still has no short term memory, and I have been asked approximately 4,234 times “where am I?”
Never a dull moment with this girl!
Paisley’s cath went smoothly, though we are disappointed that there was nothing able to be done to help her symptoms. We will find out biopsy results tomorrow, and she will be scheduled for a sedated MRV soon. For now, we are settled into HKU, and our girl just told a doctor that she appreciates how everyone treats her like a queen here. 👑
#paisleyhasanewheart #hearttransplant #heartcathtime #clotsarescary #chdwarrior #queen #nodifferentthanthequeen #mamasgirl #brave

Paisley went back a bit ago... her procedure will

Paisley went back a bit ago... her procedure will take a few hours.
Thank you for praying and holding out hope for our girl! ❤️
#paisleyhasanewheart #hearttransplant #heartcathtime #clotsarescary #mamasgirl #alwayshope

Today was her pre-op covid test, and blood work...

Today was her pre-op covid test, and blood work... her heart cath is on Friday!
I’d be lying if I said we weren’t nervous about this cath. While these procedures are considered routine, Paisley normally has them once a year now on her transplant anniversary... to need one now, four months after her last cath is concerning and nerve wracking.
But here we go, in two short days, with hearts full of hope. Always full of hope. 💗
#paisleyhasanewheart #hearttransplant #heartcathtime #nervousmama #heartwarrior #chdawareness

It’s ok if you fall apart sometimes...tacos fall

It’s ok if you fall apart sometimes...tacos fall apart all the time, and we still love them 🌮❤️
#finnsbraveheart #everynowandthenifallapart #tacosfallapart #westilllovethem #letstacoboutit #mamasboy #babynumber4

A little unicorn in the snow. 🦄❄️ #paisley

A little unicorn in the snow.
🦄❄️
#paisleyhasanewheart #snowday #unicorngirl #unicornlove #beaunicorn

He is halfway to 11 today! 💙 happy half birthda

He is halfway to 11 today! 💙 happy half birthday, Jackson!
#jacksonsdimples #halfbirthday #halfwaytoeleven #happyhalfbirthday

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