Saturday, September 17, 2016

An Anniversary Of Hope...

One year ago today, we were sad to be back in the hospital with our tiny P, who needed to have surgery to place a G-tube so that she could begin to regain some of the weight she was losing...

Our tiny girl was down to eighteen pounds, and everyone was worried.



She ended up having so many complications following that surgery, and she was inpatient for quite a while.



But on this day, after signing so many papers, and working with her team for several months, and not being sure she would qualify... on this day, while we were in the hospital, we got a letter.
It was signed by the cardiologist who now follows her, the cardiologist we love, and it let us know that today, one year ago, our baby was listed for heart transplant.



Our transplant nurse delivered the letter to our room, and she went over all the paperwork, and then honestly shared with us that it could take up to a year for tiny P to get a new heart. We know how this story ends, but when we heard this, while we were hopeful, we were also worried...everyone knew our girl likely didn't have six months left with her tiny broken heart, much less a year.



But that letter, with those words, "listed for transplant"... we were filled with hope for our girl.


And so today we talk about how a year ago we were worried, how sick our tiny P was, how she was listed for heart transplant, and how she needed a new heart. We look at her beads, especially this striped one that shows she was listed...and we celebrate.
Because today, the day our girl was listed? Today is an anniversary of hope.