Wednesday, June 10, 2015

Tomorrow...

I posted this on Facebook yesterday... and now it is happening tomorrow! 

In just two short days, on Thursday morning, tiny P is scheduled to have her next heart catheterization. This was the cath we had been looking forward to, to check the pressures in her heart (in her Glenn), and to get more of a feel for how our girl's heart is doing.
However, this cath will look a little different... During tiny P's last hospital stay we had many discussions with her team about our baby's heart and liver, and how both have declined so severely. Our baby is not well, and we have been watching her slowly decline and become more fragile since Christmas, and her liver disease and heart failure make her not a candidate for a Fontan surgery...
So when her cardiologist came with the director of heart failure and the transplant program, and asked to begin the process to see if she is a candidate for transplant, we agreed. So during her heart cath, they will collect the needed blood for her blood work, do a liver, kidney, and muscle biopsy, and check to see that she has the needed veins for a possible transplant.
Are we scared? Of course we are. And so sad for our girl, but we also have hope. This option is the one that gives tiny P hope, and with it, a chance for a future, and if we have learned anything from this precious girl, it is that we must always choose hope.
May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit. Romans 15:13


3 comments:

Renate said...

Tiny P we all love you and pray for your good health.

Musings from Kim K. said...

Continued prayers for your whole family.

AJ and Suzy said...

We have praying praying praying! We choose hope right along with you and know God is leading her team of doctors! Much love to you all! Susannah