Tuesday, October 21, 2014

Tiny Heart...

Over the years with our little M, we have learned some things about congenital heart defects... with our little M we learned about ToF (tetralogy of fallot), DORV (double outlet right ventricle), Pulmonary atresia, PR (pulmonary regurgitation), and ASD (atrial septal defect)...


Lately, we've added a few new ones... we have been learning about single ventricle, and single atrium. We've been brushing up on pulmonary atresia, and reading about dextrocardia... these are the things we knew our tiny P had, the things that were listed in her file from China before we got her.


Now, after seeing the cardiologist last week, we have added a few more things to add to our list of things to learn about...
We found out that instead of having dextrocardia, tiny P likely has heterotaxy. Rather than only the heart being shifted to the other side of her chest, all her organs are shifted. This condition brings along some other things to think about and prepare for... like problems with the liver, and some possible issues with the spleen. So when she has her catheterization, she will also have a spleen/liver scan.


We also found out that in addition to the pulmonary atresia tiny P also has pulmonary stenosis.
AND, because her precious little anatomy needs just one more thing, we learned that she also has TGA... transposition of the greater Arteries/vessels... all the major arteries going into her heart are on the wrong side.

What does all of this mean?
Honestly, I have no idea... at least not yet. But we will, hopefully soon. Tiny P is scheduled for a heart catheterization in two weeks, and we will have some more concrete answers concerning our precious tiny P, and her precious tiny heart.


7 comments:

Renate Jackson said...

Bless her sweet little heart.

Musings from Kim K. said...

Continued prayers and blessings to your sweet little one and her precious heart.

Judy from Texas said...

Prayers for Tiny P and her family.

Rochelle said...

Praying for you as we follow a similar journey. It is so hard to wrap your mind around different defects. I thought our son had TGA, but he has congenitally corrected TGA so the ventricles are switched not the arteries. He also has dextrocardia and they are doing an ultrasound to rule out heterotaxy. His heart cath will be in the next month or 2. So thankful there are others who have walked this that can help us along. Also so thankful that our sweet kids are more than just their special hearts. They bring so much joy!

Gail Viechnicki said...

The big belly laugh in the last picture is WONDERFUL! What a cutie-pie! Praying with you as you get an informal education in pediatric cardiology!

Paula said...

Hugs and prayers. So much joy and happiness rolled up in such a tiny bundle. Love her smiling/laughing pics!

jessica said...

Oh sweet girl. We will be praying for her and your entire family as you figure your way through all of that!